Journey with Down syndrome: my pledge

Oh, Thomas.

How do I even begin to write about my boy? My precious, funny, smart, amazingly AWESOME boy who makes my heart sit at near-explosion at all times.

As I said in my intro blog post, one of the reasons I couldn’t resist starting a blog is because I want to take part in educating my little corner of the world about Down syndrome. I’ve learned so, so, so much about so, so, so much since Thomas was born in June of 2011, and I’m just bursting at the seams to share what I’ve learned.

For the last few weeks, my mind has been racing ‘round and ‘round about all the things I could share, and I’ve really been struggling with where to start. I’ve decided to begin with a short and sweet post in which I declare a pledge to you.

I will be real and honest.

Those of you who know me know I’m a pretty “real” person (or, I think you know that about me). I have no desire to create a false image of myself or of my family. We are who we are. Period. So, I will not use this blog to paint a perfect picture of life. I will share the immense joy of raising Thomas (and my other children, of course). I also will share the challenges associated with raising a child with Down syndrome. I’m definitely a more optimistic person than pessimistic, so you’ll see that in my approach to raising Thomas.

I am an open person (obviously…I’m blogging), and I want to share my parenting journey. I love to talk about my kids and have to be very intentional about not going on and on {and on and on} about them. I could be wrong, but I think people have questions and curiosities about Thomas and my life with him.  I hope to answer some of these via this blog and hope the fact that I’m blogging demonstrates that anyone and everyone is welcome to ask me questions if you have them. I love to talk about Thomas and am not weirded out in the slightest if you ask me questions about Down syndrome. I am BEYOND proud of my boy and would love nothing more than to talk about him. Down syndrome is not a shush-shush sort of thing in my house. We do not look at it as a bad or negative thing, and you shouldn’t either.

Here are a few recent pictures of Thomas. Oh, how I love this little boy! Looking forward to sharing our journey with you.

One of our last pool days of the summer. What's cuter than a toddler in a diaper??? And doesn't his hair look like that of a teenager here???

One of our last pool days of the summer. What’s cuter than a toddler in a diaper??? And doesn’t his hair look like that of a teenager here???

I never have any problem getting this boy to smile for the camera. He's quick to flash a great smile!

I never have any problem getting this boy to smile for the camera. He’s quick to cheese it up!

Thomas' first night in his "big boy" bed. We found him a twin bed that is very low to the ground so he can get in and out of it. It's perfect for him, and he's done so great in it.

Thomas’ first night in his “big boy” bed. I found him a twin bed that is very low to the ground so he can get in and out of it. It’s perfect for him, and he’s done so great in it.

Signing that he's "all done" with his dinner. The boy LOVES yogurt!

Signing that he’s “all done” with his dinner. The boy LOVES yogurt!

Getting a first-class ride to his first University of Tennessee football game. He loved it (and did better than the 4yo at the game).

Getting a first-class ride from Daddy to his first University of Tennessee football game. He loved it (and did better than the 4yo at the game).

Oh my. Be still my heart.

Oh my. Be still my heart.

Hanging out in the wagon at the pumpkin patch a few weeks ago

Hanging out in the wagon at the pumpkin patch a few weeks ago.

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4 thoughts on “Journey with Down syndrome: my pledge

  1. Thomas has the most precious smile, MRR! I am looking forward to reading about your parenting journey – I am sure it will teach me a thing or two as I navigate my way as well.

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